Immunodeficiency

National Immunodeficiency Strategy | ASCIA TAPID Project | APID Training Meetings | ASCIA Immunodeficiency Register

ASCIA has significantly expanded its range of information for health professionals and patients on Primary Immunodeficiency (PID) since 2014, including the ASCIA Transplantation and PID (TAPID) Project, development of  resources to support the use of subcutaneous immunoglobulin (SCIg) and a dedicated webpage that can be accessed via www.immunodeficiencies.org.au or www.allergy.org.au/immunodeficiency   

National Immunodeficiency Strategy 

On 8th March 2019 ASCIA hosted a meeting in Melbourne to develop a National Immunodeficiency Strategy for Australia and New Zealand. The mission is to improve the health and wellbeing of people with primary immunodeficiencies (PIDs) and minimise the impact on individuals, carers, health services and the community.

A website has been developed which will be expanded in 2019. www.nationalimmunodeficiencystrategy.org.au

Delegates included clinical immunology specialists, nurses and dietitians (ASCIA members), patient organisations (AusPIPS, IDFA, IDFNZ, HAE Australasia), major research centres (Jeffrey Modell Foundation, ANU, WEHI, Garvan), funding bodies (National Blood Authority and Jurisdictional Blood Committee), supply channels (Australian Red Cross Blood Service) and other potential collaborators such as NBS MedicineWise.

The meeting was supported by unrestricted educational grants from CSL Behring and Grifols. The program and outcomes are not influenced by this support. 

ASCIA TAPID Project

The ASCIA TAPID (Transplantation and PID) project is an important and ongoing collaboration between clinical immunologists, transplant physicians and international PID experts, facilitated by ASCIA.  

A face to face TAPID meeting was held in Sydney on Saturday 25 May and Sunday 26 May 2019.

The main objective of the TAPID project is to have regular collaborations and discussions between immunologists and  transplant physicians in major centres that transplant patients with PIDs in Australasia.  TAPID meetings enable complex PID and transplantation cases to be discussed in a confidential expert forum.

At the ASCIA PID (APID) Consultants Meeting in May 2013 the concept of the TAPID (transplantation and PID) project was initiated. Since then:
  • TAPID face to face meetings have been held in February 2014, May 2017 and May 2018.
  • The TAPID project membership has increased from 12 to more than 90 members.
  • TAPID teleconferences are held each month.  

The TAPID project has been supported by unrestricted educational grants from CSL Behring.

Current TAPID members

Prefix  First Name Surname
Dr Fuad Abbas
Mr Frank Alvaro
Dr Rani Bhatia
Dr Annaliesse Blincoe (NZ) 
Dr Julian Bosco
Dr Jack Bourke
Dr Tim Brettig
Dr Maia Brewerton (NZ)
Dr Shannon Brothers (NZ)
Dr  Siobhan Burns (UK)
Prof Dianne Campbell
Dr Tina Carter
Dr Damien Chan
Dr Kritika Chetty
Dr Abigail Cheung
Dr Sharon Choo
Dr Julia Clark
Dr Catherine Cole
Dr Theresa Cole 
Dr Rachel Conyers
Dr Graham Davies (UK)
Dr Theo De Malmanche
Prof Jo Douglass
Dr Luke Droney
Ms Rachael Dunn
Dr  Yean Ewe
Dr Jacqueline Fleming 
Dr  David Foley
Dr Lara Ford
Dr  Timothy Ford
Dr Chris Fraser
Dr Katie Frith
Dr Melissa Gabriel
Dr Andy Gennery (UK)
Dr  David Gillis
Dr Paul Gray
Dr  Andrew Grigg
Dr Nada Hamad
Dr Laine Hosking
Dr Kuang-Chih Hsiao (NZ)
Dr Peter Hsu 
Dr Benedicta  Itotoh
Dr Henning Johannsen
A/Prof Alyson Kakakios
Dr  Ashisha Kallukaran
Dr  Alisa Kane
Dr Steven Keogh
Dr  Jovanka King
Dr  Shruti Kohli 
Dr Michael Lane
Dr  Daman Langguth
Dr Omega Leong
Dr Ming-Wei Lin
A/Prof Richard Loh
Dr Paxton Loke 
Prof Michaela Lucas
Dr Tracy Markus
Dr Kylie Mason
Dr Jeremy McComish
Dr Andrew McLean-Tooke
Dr Peter McNaughton
Dr Sam Mehr
Dr Mariana Melo
Dr Richard Mitchell
Dr John Moore
Dr  Emma Morris
Dr Saravanan Muthusamy
Dr Mahila Namasivayam
Dr Katherine Nicholls
Dr Melissa Norman
Dr Tracey O'Brien
Dr Samar Ojaimi
Dr Michael O'Sullivan 
Dr Manika Pal
Dr Jane Peake
Dr  Linny Phuong
Dr  Alberto Pinzon
Dr Kahn Preece 
Dr Tim Prestidge (NZ)
Dr Patrick Quinn
Dr Shanti Ramachandran
Dr Christiane Remke
Dr Stephanie Richards
A/Prof Peter Richmond
Dr David Routledge
Dr Kristina Rueter
Dr  Anthony Schwarer
Dr Sabeena Selvarajah
Dr Bella Shadur 
Dr Peter Shaw 
Dr Jan Sinclair (NZ)
Dr Charlotte Slade
Dr Joanne Smart
Dr  Trisha SooshayRaj
Ms Anna Sullivan
Dr Shruti Swamy
Dr Heather Tapp
Dr  Grace Thompson
Dr Toby Trahair
Dr Gary Unglik
Mr Ben Van Dort
Dr Brynn Wainstein
Dr Melanie Wong
Prof John Ziegler

ASCIA PID (APID) Training Meetings

The ASCIA Primary Immunodeficiency Training Meeting was held from Sunday 26 May to Thursday 30 May 2019. 

For more details go to https://www.allergy.org.au/hp/hp-information/immune-diseases

ASCIA Immunodeficiency (ID) Register

This Register is currently in the final stage of development.

The objectives of this project are to:

  • Collect data on all patients with primary immune deficiency diseases in Australia and New Zealand.
  • Enhance research, therapies and advocacy for primary and secondary immune deficiencies.

This project has been supported by unrestricted educational grants from CSL Behring and Octapharma.

Content Updated June 2019

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