ASCIA has significantly expanded its range of information for health professionals and patients on Primary Immunodeficiency (PID) since 2013, including the ASCIA Transplantation and PID (TAPID) Project, development of the National Immunodeficiency Strategy, APID training meetings, the ASCIA Immunodeficiency Diseases Register resources to support the use of subcutaneous immunoglobulin (SCIg) and a dedicated webpage www.allergy.org.au/immunodeficiency
On 8th March 2019 ASCIA hosted a meeting in Melbourne to develop a National Immunodeficiency Strategy for Australia and New Zealand. The mission is to improve the health and wellbeing of people with primary immunodeficiencies (PIDs) and minimise the impact on individuals, carers, health services and the community.
A website has been developed which will be expanded in 2019. www.nationalimmunodeficiencystrategy.org.au
TAPID (Transplantation and PID) is an important collaboration facilitated by ASCIA, between clinical immunologists, transplant physicians and international PID experts. For more details go to www.allergy.org.au/about-ascia/ascia-initiatives/tapid
The ASCIA Immunodeficiency Disease Register is available at https://idregister.ascia.org.au/
The aim of this Register is to collect and analyse de-identified data from all participating centres around Australasia. Analysis of the collected data will be able to inform current and future practice. Any future publications of data will acknowledge (with consent) anyone who has entered their patient data. Use of the Immunodeficiency Disease Register requires a username and password.
Content Updated November 2019