Immunodeficiency

Primary Immunodeficiency (PID)

ASCIA has significantly expanded its range of information for health professionals and patients on Primary Immunodeficiency (PID) since 2014, including the ASCIA Transplantation and PID (TAPID) Project, development of  resources to support the use of subcutaneous immunoglobulin (SCIg) and a dedicated webpage www.allergy.org.au/immunodeficiency  

ASCIA TAPID Project

The ASCIA TAPID (Transplantation And PID) project is an important and ongoing collaboration between clinical immunologists, transplant physicians and international PID experts, facilitated by ASCIA.  The main objective of the TAPID project is to have regular collaborations and discussions between immunologists and  transplant physicians in major centres that transplant patients with PIDs in Australasia.  TAPID meetings enable complex PID and transplantation cases to be discussed in a confidential expert forum.

At the ASCIA PID (APID) Consultants Meeting in May 2013 the concept of the TAPID (transplantation and PID) project was initiated. Since then:

  • TAPID face to face meetings have been held in February 2014, May 2017 and May 2018

  • The TAPID project membership has increased from 12 to more than 90 members

  • TAPID teleconferences are now held each month  

The TAPID project has been supported by unrestricted educational grants from CSL Behring.

Current TAPID members

Prefix  First Name Surname
Dr Fuad Abbas
Mr Frank Alvaro
Dr Rani Bhatia
Dr Annaliesse Blincoe (NZ) 
Dr Julian Bosco
Dr Jack Bourke
Dr Tim Brettig
Dr Maia Brewerton
Dr Shannon Brothers (NZ)
Prof Dianne Campbell
Dr Tina Carter
Dr Damien Chan
Dr Kritika Chetty
Dr Abigail Cheung
Dr Sharon Choo
Dr Julia Clark
Dr Catherine Cole
Dr Theresa Cole 
Dr Nyree Cole (NZ)
Dr Rachel Conyers
Dr Graham Davies (UK)
Dr Theo De Malmanche
Prof Jo Douglass
Dr Luke Droney
Ms Rachael Dunn
Dr Jacqueline Fleming 
Dr Lara Ford
Dr Chris Fraser
Dr Katie Frith
Dr Melissa Gabriel
Dr Andy Gennery (UK)
Dr  David Gillis
Dr Nicole Gilroy
Dr Paul Gray
Dr Laine Hosking
Dr Kuang-Chih Hsiao
Dr Peter Hsu 
Dr Henning Johannsen
A/Prof Alyson Kakakios
Dr Steven Keogh
Dr  Jovanka King
Dr  Shruti Kohli 
Dr Michael Lane
Dr Omega Leong
A/Prof Richard Loh
Dr Paxton Loke 
Prof Michaela Lucas
Dr Tracy Markus
Dr Kylie Mason
Dr Jeremy McComish
Dr Andrew McLean-Tooke
Dr Peter McNaughton
Dr Francoise Mechinaud
Dr Sam Mehr
Dr Richard Mitchell
Dr Saravanan Muthusamy
Dr Mahila Namasivayam
Dr Katherine Nicholls
Dr Tracey O'Brien
Dr Samar Ojaimi
Dr Michael O'Sullivan 
Dr Manika Pal
Dr Jane Peake
Dr  Linny Phuong
Dr Kahn Preece (NZ)
Dr Tim Prestidge (NZ)
Dr Patrick Quinn
Dr Shanti Ramachandran
Dr Christiane Remke
Dr Stephanie Richards
A/Prof Peter Richmond
Dr David Routledge
Dr Kristina Rueter
Dr Sabeena Selvarajah
Dr Bella Shadur 
Dr Peter Shaw 
Dr Jan Sinclair (NZ)
Dr Charlotte Slade
Dr Joanne Smart
Dr  Trisha SooshayRaj
Dr Shruti Swamy
Dr Heather Tapp
Dr  Grace Thompson
Dr Toby Trahair
Dr Gary Unglik
Mr Ben Van Dort
Dr Brynn Wainstein
Dr Melanie Wong
Prof John Ziegler

ASCIA Immunodeficiency (ID) Register

The objectives of this project are to:

  • Collect data on all patients with primary immune deficiency diseases in Australia and New Zealand.
  • Enhance research, therapies and advocacy for primary and secondary immune deficiencies.

This project is supported by unrestricted educational grants from CSL Behring and Octapharma.

The estimated completion date for this project is mid 2018. 

Updated August 2018

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